Congenital Diaphragmatic Hernia Awareness Day

WHEREAS, one in every 2,500 pregnancies are diagnosed with a congenital diaphragmatic hernia (CDH); and

WHEREAS, since 2000, it is estimated that more than 500,000 babies have been born with CDH; however, only 50 percent of those babies survived; and

WHEREAS, CDH is as common as spina bifida and cystic fibrosis; however, very few people know about it or are aware of it; and

WHEREAS, 1,600 babies are born with CDH every year in the United States with an average of 25 born in Alabama each year; and

WHEREAS, there are many people living in Alabama who have been diagnosed with and have survived their CDH; although many families in Alabama have endured the horrible pain and grief associated with the loss of loved ones with CDH; and

WHEREAS, those with CDH often endure multiple surgeries and possible medical complications beyond their diagnosis that include heart defects, pulmonary complications, gastric and intestinal problems, developmental delays, and may require respiratory and medicinal support for years; and

WHEREAS, raising awareness of this congenital defect will help bring about acceptance and support for those suffering with it and will help advocate for urgently needed medical research and advances:

NOW, THEREFORE, I, Robert Bentley, Governor of Alabama, do hereby proclaim April 19, 2013, as

 Congenital Diaphragmatic Hernia Awareness Day

in the state of Alabama and urge all citizens to learn more about congenital diaphragmatic hernias and support those who are affected.

Given Under My Hand and the Great Seal of the Office of the Governor at the State Capitol in the City of Montgomery on the 19th day of April 2013.

                        

Robert Bentley, Governor